Much has been written and spoken about the impact upon quality of life for a person diagnosed with head and neck cancer. Quality of life surveys undertaken worldwide repeatedly show that the main problem is a temporary or permanent damage to the ability to eat, drink or swallow.

Where better to seek advice about what helps and what does not than straight from the mouths of head and neck cancer patients?

In 2005, most of our Headstart members completed a questionnaire providing information which forms the backbone of our book. This in turn inspired members to share their personal accounts of their experiences in coping with eating and drinking difficulties.

The result is this simple, free 100+ page booklet packed with ideas and experiences from patients and carers. Just as each individual is unique,
so will be their illness and treatment regime and thus their experience. Hence, some of the contradictions in advice. Often there appears little concrete, straight-forward advice to give to a patient. Much is trial and error and always perseverance.

Download the free booklet here (pdf, 1.69Mb)

NOTE: A revised version of the booklet is on the way, with additional materials and some corrections to grammar and spelling etc!

If you have any feedback or comments on the booklet, please let us know.